This page provides information on Ehlers Danlos Syndrome scholarships to enable people strongly affected by this syndrome to achieve their educational dreams.
“Ehlers Danlos Syndrome” never heard of it, have you? Or you’re unfamiliar with the phrase? You might have encountered people with this syndrome and don’t even know what it is.
Well here are we putting you out of the dark…
What is Ehlers Danlos Syndrome (EDS)?
EDS is a group of inherited disorders that affects or weakens the connective tissue supporting the skin, joints, bone, walls of the blood vessels, tendons, ligaments, and many other organs and tissues.
Defects in connective tissues cause the signs and symptoms of these conditions which range from mildly loose joints to life-threatening complications.
Does Ehlers Danlos Syndrome qualify for disability?
There are stages of EDS, and if you have the mild one which allows you to work then you may not qualify for disability benefits.
However, if you are unable to work due to severe symptoms from it you will be qualified as disabled and also for other disability benefits including the Social Security Disability Insurance (SSDI) and Supplementary Security Income (SSI).
We have an already published article about the disability benefits above, that is, the Social Security Disability Insurance (SSDI) and Supplementary Security Income (SSI). They are benefits offered by the government to the disabled, and if you meet all the requirements you too can earn from this disability benefit.
Individuals with the EDS that want to further their education in a college, university, or training program can apply for the Ehlers Danlos scholarships we have listed on this page. Each of the scholarships carries different requirements which you must meet to earn them.
Without further ado, let’s get to these Ehlers Danlos Syndrome scholarships…[lwptoc]
Ehlers Danlos Syndrome Scholarships
There aren’t many scholarships for individuals suffering from EDS, but there are enough general disabilities scholarships they can apply for. Get them below:
- EveryLife Foundation RAREis Scholarship Fund
- The Hannah Bernard Memorial Scholarship
- Bryson Riesch Paralysis Foundation (BRPF) Scholarship
- NBCUniversal Tony Coelho Media Scholarship
- Karman Healthcare Mobility Disability Scholarship
- Hannah Ostrea Memorial College Scholarship
- McBurney Scholarships for Students with Disabilities
- The Charlotte W. Newcombe Foundation Scholarships for Students with Disabilities
EveryLife Foundation RAREis Scholarship Fund
The EveryLife Foundation establishes the RAREis Scholarship Fund to assist individuals living with a rare disease by supporting their educational aspirations. The scholarship is awarded annually and valued at $5,000 to 35 recipients.
Applicants must be over 17 years old, residing in the United States, and diagnosed with a rare disease such as the Ehlers Danlos Syndrome (EDS). This award is among the Ehlers Danlos Syndrome scholarships as it is a rare disease and you can apply for this award.
Applicants must plan to enroll or already enrolled in an accredited higher institution in the United States to pursue an undergraduate or graduate program. The educational institutions include universities, colleges, and vocational or trade schools.
Other requirements include a current transcript of grades and diagnosis verification form, an essay explaining your goals and how receiving the scholarship will help you achieve them. Scholarships are awarded based on the essays, leadership abilities, involvement in school and community activities, work experience, academic performance, and financial need.
The Hannah Bernard Memorial Scholarship
This scholarship is available to individuals fighting complex pain conditions such as the Ehlers Danlos Syndrome (EDS), Complex Regional Pain Syndrome (CRPS), and Small Fiber Neuropathy (SFN).
Anyone with any of the above-mentioned complex pain conditions and others not listed here who want to pursue an education in high school, college, university, or online learning can apply for the $600 scholarship.
You simply need to fill an application and essays of 500 words or less describing yourself and how you are living your best life despite chronic pain and also how receiving this scholarship will help you achieve your educational goals.
Bryson Riesch Paralysis Foundation (BRPF) Scholarship
The BRPF also supports the Ehlers Danlos Syndrome scholarships to people suffering from it but still want to further their education.
Individuals with Ehlers Danlos Syndrome or whose child has a disability can apply for this scholarship. It is a $2,000 to $4,000 scholarship awarded to two to three of such individuals who are already enrolled or about to in a four or two-year college program.
Applicant must have a minimum GPA of 2.5 with an essay of 200 words or less describing reasons why the applicant deserves the scholarship and official academic transcripts. The scholarship is available to people in the United States but priority will be given to those from Wisconsin.
NBCUniversal Tony Coelho Media Scholarship
Named after Tony Coelho – a former United States representative – and to be a part of the Ehlers Danlos scholarships providers. This award assists individuals with the disease achieve their educational dreams, NBCUniversal has been offering an annual scholarship award since 2015 to people plagued with the disability.
The scholarship also extends to other general disabilities as well and is offered to eight undergraduates and graduate students with disabilities such as the EDS but still want to pursue a career in the communications, media, or entertainment sector.
Each student will receive a total sum of $5,625 to help cover the cost of education at their current post-secondary institution.
Interested in applying? Meet the following eligibility requirements:
- Applicants must be currently enrolled as undergraduate or graduate students at an accredited university or college in the United States by the fall semester of the application year.
- You must identify as an individual with a disability
- Must take interest in pursuing a degree in communications, media, or entertainment industry – all majors are welcome to apply.
- While it is not required for you to be a U.S citizen to be eligible for this scholarship, you must be currently enrolled in a college or university in the United States.
Remember, this scholarship is provided annually and if you are unable to meet up or didn’t win the current year you can always check in the following year and apply.
Other documents for the online application of the NBCUniversal Tony Coelho Media Scholarship are three essay questions, a resume, unofficial transcripts, and a letter of recommendation.
Karman Healthcare Mobility Disability Scholarship
Just as the name implies, this scholarship is for people the disabled who use a wheelchair or other mobile devices to move around. Applicants of this scholarship must be currently enrolled in a post-secondary institution in the United States and must be 16 years old or older.
Applicant must maintain a minimum CGPA of 2.0 to be considered for the scholarship and the transcripts must be provided during application. You will write and submit an essay, provide proof of mobility disability i.e. doctor’s note and a portrait image of yourself that will be posted online if you win the award.
The scholarship award is $500 which will be offered to two students, it is also provided annually just in case you’ve missed the current year.
Wondering why this scholarship is here?
Well, people with severe EDS require wheelchairs and the use of other mobility devices to move around and if you are one of them do not sleep on this scholarship. The Karman Healthcare Mobility Disability Scholarship totally qualifies for one Ehlers Danlos scholarships to assist people with the disability.
Hannah Ostrea Memorial College Scholarship
This scholarship was established in honor of little Hannah Ostrea who died of an ultra-rare genetic disorder at the age of three. The scholarship is for students who suffer from a rare disability, such as the Ehlers Danlos Syndrome, but still want to pursue a college degree program.
The scholarship is offered annually to two students who will receive the $1,000 award based on the submitted essays, outstanding academic achievement, and community service. This Hannah Ostrea Memorial College Scholarship is one of the Ehlers Danlos Syndrome scholarships to assist the educational pursuit of individuals living with it.
The eligibility requirements for the scholarship are;
- Applicant must be enrolled into an accredited college in the United States for a two or four-year degree program.
- Must be a citizen of the United States or a permanent legal resident
- Parent, patient, or sibling of a patient diagnosed with a medically complex rare disease (living or deceased). Age at the time of diagnosis for the affected child must be 17 years or less.
- Maintain a GPA of 2.5 or higher (GPA not considered for parents)
- Have not received this scholarship in the past.
McBurney Scholarships for Students with Disabilities
This is a general scholarship for people living with one form of disability or another such as the Ehlers Danlos Syndrome, making it pass as one of the Ehlers Danlos Syndrome scholarships.
The McBurney Scholarships for Students with Disabilities is only tenable at the University of Wisconsin-Madison, that is, students who want to apply for this scholarship must enroll in an undergraduate or graduate program at the university.
You can apply for the scholarship when you have a diagnosed disability such as the Ehlers Danlos Syndrome (EDS) and in your final year at high school and aim to enroll in the University of Wisconsin-Madison. You can also apply if you are already enrolled in the university.
Other documents to apply for the scholarship include two reference letters and an academic transcript. It is open to United States citizens, permanent residents, and foreign students who want to come study in the U.S too.
The Charlotte W. Newcombe Foundation Scholarships for Students with Disabilities
This foundation provides educational funding for students with disabilities such as Ehlers Danlos Syndrome, cerebral palsy, autism, blindness, etc. The scholarship passes as one of the Ehlers Danlos Syndrome scholarships since individuals with the disability can also apply for it.
Grants are not made directly to individual students instead they are provided by colleges and universities that are partnered with the Newcombe Foundation.
The partnered universities and colleges are:
- Edinboro University of Pennsylvania
- Long Island University Brooklyn Campus
- McDaniel College
- New York University
- Ursinus College
- Behrend College
- Brooklyn University
- Cabrini University
- Columbia University
- Delaware Valley University
- Fairleigh Dickinson University
- Gallaudet University
- Penn State University
- Temple University
- Villanova University
This brings an end to the Ehlers Danlos Syndrome scholarships and as I mentioned earlier, there aren’t many of these scholarships but the ones mentioned here should do. People with disabilities such as the Ehlers Danlos Syndrome and other general disabilities aren’t limited to just these specific types of scholarships.
You can also expand your search and apply for the general scholarships that normal students apply for, such as the Vanier Canada scholarship, MasterCard Foundation scholarships, and others. Although their requirements are usually high if you think you can meet them then go on ahead and apply for them.
Do not put all your eggs in a single basket, apply for the disability scholarships and also general scholarships as well to get as much educational support as you can get. You have a dream to pursue, do not allow your disabilities to limit you, go on, soar high, and meet your career goals.
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Thaddaeus is a lead content creator at SAN with over 5 years of experience in the field of professional content creation. He has written several helpful articles for Blockchain projects in the past and even recently but since 2020, he has been more active in creating guides for students who want to study abroad.
When he's not writing, he's either watching anime, making a delicious meal, or definitely swimming.